He’s not looking at me. What happened?

benreecebubble1Right after Ben’s first birthday, around the first of May, we baby-sat his cousin, our nephew, for a week while my sister and her husband took a  vacation. Ben and his cousin are one month apart and we saw it as an opportunity to have the two, one year olds, spend time together and perhaps build a bond between them that would last a lifetime. Ben didn’t like it. His cousin didn’t like it either, he wanted mommy and daddy, not us. Almost immediately Ben became irritated at his cousin’s tearful cries for attention. His irritation soon became violent. He smacked his cousin every chance he got. We responded with putting Ben in time out for the first time in his young life. Needless to say Ben hated it but we figured he can’t be allowed to act this way, even though I mostly played it off as boys will be boys.

Over the next few weeks at home Ben kept up with his violent behavior, along with frequent temper tantrums with one or two lasting up to an hour. This was definitely out of character and extremely frustrating. We assumed that Ben was still angry about his cousin and having to share our attention. I assumed it was normal. What did I know?

More time outs, more frustrations.

Ben escalated his violence by biting his mom in anger. Again something we have yet to see in the first 12 months.

On one occasion Ben bit his mother hard, made her cry, it hurt bad, so I immediately yanked him up and took him into time out. Now, since Ben is just a year old at this point, time out consisted of changing rooms, a quite environment, sitting in a chair with him in my lap and holding him until he settled down. I usually kept quiet, sort of ignoring him until he settled down. Once he settled down I would love up on him rewarding him for calming down but also explaining to him what he did wrong.

But this time, when he bit his mother, I got pretty angry, I’d had it and when I got him into time out, with him crying and trying to get loose, I sort of yelled at him to stop. Well I admit it, I did yell, I was furious that his behavior was becoming worse and I wanted it to stop. He didn’t, it got worse, he fought and screamed so much he broke a sweat and it continued for another 15-20 minutes as I held him silently but firmly. I tried to get his attention, tried to get him to look at me, to look into my eyes, and he wouldn’t. He just fought and had he had known the words I’m sure he would have been cussing up a storm.

“Look at me!” I said hoping to end the tantrum, turning him so his face was in front of mine, but his eyes stared off to the side. “Look at me Ben!” and he refused.

This sent a chill up my spine. Not that I knew anything about autism, it was because this just wasn’t like him. I remembered noticing his lack of eye contact when his cousin was with us for the week. I thought that was just him having his feelings hurt and being jealous. But this was different, I was suddenly aware that I was attempting to break him, break his will and instead it broke me. I sobbed uncontrollably, something is wrong, this isn’t worth it, just let him bite, do anything he wants. I left the room, I left him to work it out on his own. I left him to run away. A little later he came into my office where I was hiding my shame, my self doubt, my heartache. He came in and climbed up into my lap and loved me. I cried so hard it made my wife cry. In the 9 years we have been together she has only seen me in this state 3 times, once for reasons I don’t want you to know about, this time when I had the come to Jesus with myself and the last time months later when I knew Ben was autistic… or something.

After that night of biting and epiphany, I did notice often, all the time in fact, that Ben was refusing to make eye contact. Every night when we played right before bed, I would hold him so he couldn’t help but look at me and he wouldn’t. It got so it was kinda funny, his mom and I would joke that he was just like our cat Winnie, who also wouldn’t look us in the eye. Little did we know how serious it was and how long it would be before he would ever do it again.

This is an account of Ben’s regression into the autism spectrum.

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7 responses to “He’s not looking at me. What happened?

  1. Hi,

    I saw your comments on the Vindy.com story. Are you in the Youngstown ohio area?

    Please e-mail me.

    Thanks

  2. I have a lump in my throat and tears in my eyes remembering how I felt in those early days too. Little thing after little thing didn’t seem right until one day I ended up sobbing under the weight of them.

    I wanted to thank you so much for your kind comment on the NY Times site. And I’m here to say, “Nice shoes too!” ;)

  3. It sucks! I hate that any person has to go through what we’ve been dealt with…

  4. My heart aches and my prayer is with your family. Thanks for sharing your story.

  5. This is my grandchild that I was next to when he was born. My beautiful, precious Ben, his father, my own child, his mother, more than so dear. Pain for myself is almost non-existent when I listen and see and feel and experience the pain in, of, and through those 3 every single day, every hour of each long day. I thank God for their patience, seeking help and the never ending search for answers. Their Love is bottomless and ever fresh, their minds and bodies know no exhaustion. God loves that little one and his family – His Grace and Mercy will be abundant for them without pause – I believe that or I would succomb to my own anguish that my love for them created.

  6. That was very touching, it isn’t very often that you hear these things from a father’s point of view. As a parent of a son with autism, I too have felt the pain of feeling like I was “breaking” my son. Remembering back to that time in my life brought tears to my eyes, as did Sondra’s comment. Ben is lucky to be blessed with such a wonderful family.

  7. Thank you Peggy, Ben is extremely blessed to have had so many moms and dads before him work with their children and pioneer many of the treatments we have taken advantage of over the years.

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